Funded Grants
I have worked on funded projects as Principal Investigator and Co-Investigator. These projects are aimed at improving care for patients with vascular anomalies and enhancing medical education. Most recently, I am serving as a Co-Investigator on a project funded by the National Heart, Blood, and Lung Institute aimed at developing a model of health-related quality of life and patient-reported outcome measures for children with rare and complex vascular anomalies. I also served as Principal Investigator on a project funded by the Agency for Healthcare Research and Quality focusing on care coordination in rare diseases, a Co-Investigator on a grant from the Department of Defense dedicated to developing online communication tools for clinicians, patients, and families, and a Co-Investigator on a grant from the National Cancer Institute that involves developing a communication tool for parents of children with cancer that is embedded in the electronic health record. I have also received support for projects addressing communication needs, faculty development, and patient-centered research initiatives.
External Funding
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2025. National Heart Lung and Blood Institute. Rare Diseases Clinical Research Consortia (RDCRC; U54). "ARDVARC- Advancing Rare Disorders: Vascular mAlformations Research Network with CaNVAS. Project 2: Vascular Malformation Patient-Reported Outcome Measures." Co-Investigator. Site Principal Investigator: Bryan Sisk. Principal Investigator: Denise Adams and Michael Jeng. 1U54HL185006-01.
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2025. National Cancer Institute. NIH Exploratory/Developmental Grant (R21) "Cancer Care Companion: An Electronic Health Record Tool to Improve Information Exchange and Self-Management in Pediatric Cancer." Co-Investigator. Principal Investigator: Bryan Sisk. 1R21CA290223-01A1.
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2024. Department of Defense, FY24 Discovery Award. "Overcoming Barriers to Expert-Informed Care for Vascular Anomalies
Through a Web-Based Platform: The VAccess Program.” Co-Investigator. Principal Investigator: Bryan Sisk.